We picked up Robert's new AFOs on Thursday and today we bought some shoes so he could start wearing them. I keep telling him that every one's going to be jealous becasue they are SO COOL looking....but he's not falling for it.
He will start wearing them gradually, but eventually will wear them all day long. His foot/leg problems aren't severe right now, but if we don't take care of them they could get much worse. So our hope is that with the stretching exercises and braces we can take care of it while he is young, and hopefully he won't have to wear them very long.
He had an MRI of his head and spine last week to check again on the syrinx and other stuff. We go back in for the results in a couple of weeks and hopefully all will be good. We are praying that he will not have to have surgery again, but we're told that it is a possibility.