Monday, January 26, 2009

Robert's News

We finally had an appointment with the neurosurgeon today for Robert's tethered spinal cord. First of all let me say that going to a children's hospital is a humbling experience. Seeing so many kids in wheelchairs and such makes you think your challenges aren't so bad.

Back to Robert's news. He will be having surgery to release the tethered cord on February 16. We were told the surgery should last about 2 hours and to expect a 3 day hospital stay. This is shorter than we thought so we are feeling pretty good about things. The hopes are that this surgery will take care of his walking and potty problems. It is not a guaranteed fix so we will be praying very hard the next 3 weeks that the surgery goes well and takes care of things. I will be one happy momma when I no longer have to watch my baby hurting.

We realized after we got home that the day of his surgery is also the 5 year anniversary of the day we learned of Davie's anencephaly. (Also known by us as D-Day, or diagnosis day.) This could prove to be an emotional day!

Just as a side note we will be fasting this Sunday for him.


  1. I will keep you all in my prayers!
    Goodluck with everything and keep us posted.

  2. good luck. we will pray for you and a good outcome on surgery!

  3. Best of luck, Kiley! We'll be saying a prayer for your boy.

  4. We are so glad to see how well all has gone so far with Robert.